Last Updated: 04/08/2015
National EHDI Resource Center Collaborating Agencies
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is a non-profit membership organization that counts among its many objectives promoting detection of hearing loss in early infancy, as well as prompt early intervention and continued use of appropriate hearing aids. Other objectives are to collaborate with physicians, audiologists, speech/language specialists, and educators to promote educational, vocational, and social opportunities for individuals of all ages who are deaf or hard of hearing, gather and disseminate information on hearing loss, including its causes and options for treatment, and collaborate on research relating to auditory-verbal and auditory-oral communication.
Alternative Communication Services (ACS) has a mission to provide the highest quality voice-to-text and sign language services possible, delivering these services to consumers throughout the world, and recognizing the unique strengths of each individual in the process.
American Academy of Audiology (AAA) is dedicated to providing quality hearing care services through professional development, education, research, and increased public awareness of hearing and balance disorders
American Academy of Family Physicians (AAFP) and its affiliate organizations work closely together to advance the specialty of family medicine.
The American Academy of Pediatrics (AAP) is a professional membership organization of 62,000 primary care pediatricians, pediatric medical sub-specialists and pediatric surgical specialists dedicated to the health, safety, and well being of infants, children, adolescents and young adults. AAP has endorsed hearing screening for all newborns.
American Public Health Association (APHA) champions the health of all people and all communities by strengthening the public health profession, speaking out for public health issues and advancing federal policies backed by science.
The American Society for Deaf Children (ASDC) is an organization of families and professionals committed to educating, empowering, and supporting parents and families to create opportunities for their children who are deaf and hard of hearing in gaining meaningful and full communication access, particularly through the competent use of Sign Language in the home, school, and community. ASDC works to assure the highest quality programs and services for parents to make sound and informed choices to meet their children's educational, communication, personal, and social needs.
The American Speech-Language-Hearing Association (ASHA) is a professional and scientific association for more than 115,000 speech-language pathologists, audiologists, and speech, language, and hearing scientists in the United States and internationally. ASHA's mission is to promote the interests of and provide the highest quality of services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities.
The Association of Maternal and Child Health Programs (AMCHP) provides leadership to assure the health and well-being of all women of reproductive age, children, and youth, including those with special health care needs and their families. It is a national organization representing state public health leaders in maternal and child health and other interested individuals and organizations. AMCHP relies on strong partnerships with other public sector officials and agencies, families and advocates, research professionals, and a range of other key individuals and their organizations at the state and local levels. AMCHP publishes a bimonthly newsletter and convenes a yearly conference for planning, policy development, and dissemination of program information.
American Telemedicine Association (ATA) is the leading international resource and advocate promoting the use of advanced remote medical technologies to fully integrate telemedicine into transformed healthcare systems to improve quality, equity and affordability of healthcare throughout the world.
Association of University Centers on Disabilities’ (AUCD) mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting members in research, education, and service activities that achieve the AUDC vision.
Beginnings has served families in North Carolina as a non-profit organization since 1987. Beginnings was established to provide emotional support and access to information as a central resource for families with deaf or hard of hearing children, age birth through 21. Beginnings provides an impartial approach to meeting the diverse needs of these families and the professionals who serve them. These services are also available to deaf parents who have hearing children. The mission of Beginnings is to help parents be informed, empowered and supported as they make decisions about their child. In addition, Beginnings is committed to providing technical assistance to professionals who work with these families to help the children achieve full participation in society.
Boys Town National Research Hospital is one of the world's largest clinical and research centers dealing with disorders of hearing, speech, language and learning. Boys Town National Research Hospital offers deaf and hard of hearing children and their families a wealth of services ranging from pre-school programs, sign language classes and tutoring to printed materials and videos.
The Catalyst Center is an MCHB-funded national center dedicated to improving health care insurance and financing for children and youth with special health care needs (CYSHCN), providing resources to guide policies and practices pertaining to adequacy of financing for care.
Centers for Disease Control and Prevention (CDC) works to protect America from health, safety and security threats. Whether diseases start at home or abroad, are chronic or acute, curable or preventable, human error or deliberate attack, CDC fights disease and supports communities and citizens to do the same.
Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Directors of Speech and Hearing Programs in State and Welfare Agencies (DSHPSHWA) was established in 1964 to promote awareness about communication disorders and the continued development of public health programs for the diagnosis and treatment of these disorders. Today, the organization is active in national maternal and child health issues and includes members from nearly every state.
Early Childhood Technical Assistance (ECTA) Center is funded by the Office of Special Education Programs to support early intervention and preschool special education programs and practitioners. The ECTA Center assists states in building effective, efficient systems; scaling up and sustaining effective services; and, promoting research-based interventions for infants, toddlers, and preschoolers with disabilities and their families.
Educational Audiology Association (EAA) is an international organization of audiologists and related professionals who deliver a full spectrum of hearing services to all children, particularly those in educational settings.
The Gallaudet University Genetics Program has provided genetic evaluation and counseling services to members of the Deaf community and other deaf and hard of hearing people for more than 20 years.Education is an important component of the genetics program.
Genetic Alliance’s Baby’s First Test houses the nation's newborn screening clearinghouse and provides current educational and family support and services information, materials, and resources about newborn screening at the local, state, and national levels.
Got Transition is a cooperative agreement between the Maternal and Child Health Bureau and The National Alliance to Advance Adolescent Health to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families.
Hands and Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. Hands and Voices provides non-biased information about communication methodologies and believes that families will make the best choices for their child if they have access to good information and support. From American Sign Language to cochlear implants, Hands and Voices represents people from all different approaches to and experiences with deafness and hearing loss.
Head Start is a comprehensive child development program which serves children from birth to age 5, pregnant women, and their families. The Head Start program has a long tradition of delivering comprehensive and high quality services designed to foster healthy development in low-income children. Head Start grantee and delegate agencies provide a range of individualized services in the areas of education and early childhood development; medical, dental, and mental health; nutrition; and parent involvement. In addition, the entire range of Head Start services is responsive and appropriate to each child's and family's developmental, ethnic, cultural, and linguistic heritage and experience. Head Start is a child-focused program and has the overall goal of increasing the school readiness of young children in low-income families. Head Start Knowledge and Information Management Services (HSKIMS) and the online Early Childhood Learning and Knowledge Center (ECLKC) serve as a repository of information to support best practices.
Head Start Center on Health showcases research-based practices to ensure the health and mental wellness of Head Start staff, children, and families. The Center creates high-quality information to help every Head Start and Early Head Start program implement effective approaches and inform the Head Start community of current Office of Head Start priorities, policies, and expectations to ensure healthy outcomes for children and families.
Head Start Information and Communication Center’s Early Childhood Learning and Knowledge Center (ECLKC) disseminates information to programs nationwide promoting the school readiness of young children from low-income families. Head Start and Early Head Start programs support the mental, social, and emotional development of children from birth to age 5.
The Individuals with Disabilities Education Act (IDEA) Infant and Toddler Coordinators Association is organized as a not-for-profit corporation to promote mutual assistance, cooperation, and exchange of information and ideas in the administration of Part C and to provide support to state and territory Part C coordinators.
Institute for Healthcare Improvement (IHI), an independent not-for-profit organization, is a leading innovator, convener, partner, and driver of results in health and health care improvement worldwide.
Joint Committee on Infant Hearing (JCIH) consists of representatives appointed by six major professional organizations with a commitment to identifying congenital hearing loss as early as possible. Created in the late 1960's at the suggestion of ASHA, membership also includes the American Academy of Otolaryngology - Head and Neck Surgery, the American Academy of Audiology, the American Academy of Pediatrics, the Council for Education of the Deaf, and the Directors of Speech and Hearing Programs in State Health and Welfare Agencies. JCIH recommendations on policy and practice are widely cited and have had a major impact on early identification of hearing loss.
Marion Downs Hearing Center will provide services, resources, education and research to support the needs of individuals who are deaf or hard of hearing. Support will extend to their families as well. The vision for the hearing center is to develop important ideas and conduct research that will lead to significant experimental advancements.
National Association of the Deaf (NAD) is a national civil rights organization of, by and for deaf and hard of hearing individuals. It carries out its federal advocacy work through coalition efforts with specialized national deaf and hard of hearing organizations, as well as coalitions representing national cross-disability organizations.
The National Association of State Directors of Special Education (NASDSE) is a not-for-profit organization established in 1938 to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE activities aredesigned to provide professional support to its members and others interested in special education.
National Center for Cultural Competence (NCCC) is a component of the Georgetown Child Development Center housed within the Department of Pediatrics at Georgetown Medical Center. The mission of NICC is to increase the capacity of health care programs to design, implement, and evaluate culturally-competent service-delivery systems.
National Center for Family-Professional Partnerships/ Family Voices is a national organization that serves as a clearinghouse for information and education concerning the health care of all children with special health needs. With ten Regional Coordinators and a national membership of 20,000, they work to advocate for health care reform and policy that includes family-professional partnerships, cultural competence, and cost-effective, flexible, quality health care for children with special needs. Members work in public and private hospitals, public health programs, state capitals, and Washington, D.C., as well as serving on boards and task forces in partnership with health professionals and policymakers.
National Center for Medical Home Implementation (NCHMHI) is a cooperative agreement between the Maternal and Child Health Bureau and the American Academy of Pediatrics to work in cooperation with federal agencies, other partners and stakeholders to ensure that all children and youth, including children with special needs, have access to a medical home.
National Early Childhood Technical Assistance Center (NECTAC) was established in 1987 under federal legislation. It works with its Consortium Partners to support states, jurisdictions, and others to improve services and results for young children with disabilities and their families.
National Institute for Child Healthcare Quality (NICHQ) is dedicated to the mission of improving children’s health. We achieve this mission by helping others who are similarly dedicated – typically healthcare professionals and delivery organizations, foundations, government agencies, and community organizations – achieve breakthrough improvements for children and families.
National Resource Center for Health and Safety in Child Care and Early Education works to improve the quality of child care and early education programs by supporting child care providers and early educators, families, health professionals, early childhood comprehensive systems, state child care regulatory agencies, state and local health departments, and policy makers in their efforts to identify and promote healthy and safe child care and early education programs.
The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) provides quality improvement initiatives, an innovative data repository and technical resources for newborn screening programs.
Oberkotter Center for Professional Learning focuses resources and efforts on building networks of well-prepared professionals in a variety of schools and other settings who can teach and support children who are using listening and spoken language.
Prevent Blindness is a leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight.
Public Health Informatics Institute (PHII) is known for its expertise as a neutral convener of public health professionals and their stakeholders, transforming health practitioners’ ability to apply information effectively in order to improve health outcomes worldwide.
Stop CMV fosters congenital CMV awareness via internet and public awareness campaigns. The CMV Action Network is comprised of families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus.
Visual Language and Visual Learning Center (VL2) advances learning on how aspects of human higher cognition are realized through vision by exploring the effects of visual processes, visual language, and social experience on the development of cognition, language, reading and literacy for the benefit of all humans.
Zero to Three is a national nonprofit organization that informs, trains and supports professionals, policymakers and parents in their efforts to improve the lives of infants and toddlers. Zero to Three’s Early Head Start National Resource Center (EHS NRC) is a storehouse of early childhood expertise supporting best practices in Head Start programs.