Last Modified: 09/22/2023
Interagency Collaboration, Data Sharing, and Privacy Issues
The NTRC has worked with other TA centers and various state EHDI programs to gather information about how EHDI, Part C, health care providers and families can effectively, efficiently, and appropriately share information to improve services to children who are deaf or hard of hearing. This information includes:
- Creating Data Sharing Partnerships to Improve Systems
- Data Sharing Agreement Checklist: EHDI and Part C
- White Paper on Privacy Regulations: How EHDI, Part C, and Health Providers can Ensure that Children and Families Get Needed Services [PDF]
- Survey of EHDI Program Practices Related to Federal Privacy Regulations [PDF]
- Survey of Part C Program Program Practices Related to Data Sharing with EHDI [PDF]
- State examples of Tools to Facilitate Information Exchange
- PowerPoint: Federal Privacy Regulations and Information Sharing Among Programs [PDF]
The NTRC has gathered examples of the following information exchange tools from several states:
