Last Modified: 03/10/2022
Interagency Collaboration, Data Sharing, and Privacy Issues
NCHAM conducted an investigation into the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families. This information includes:
- White Paper on Privacy Regulations: How EHDI, Part C, and Health Providers can Ensure that Children and Families Get Needed Services [PDF]
- Survey of EHDI Program Practices Related to Federal Privacy Regulations [PDF]
- Survey of Part C Program Program Practices Related to Data Sharing with EHDI [PDF]
- State examples of Tools to Facilitate Information Exchange
- PowerPoint: Federal Privacy Regulations and Information Sharing Among Programs [PDF]
NCHAM has gathered examples of the following information exchange tools from several states: