Coffee Break Webinar: EHDI After Newborn Screening: Status of Meeting the Evaluation by 3 months of Age and Intervention Enrollment by 6 months Benchmarks Among 38 states, 2021
When: October 19, 2023 | 12:00 pm - 1:00 pm MDT
Description
CDC has been supporting jurisdictional EHDI programs by providing funding and technical assistance to facilitate the collection of newborn hearing screening, diagnosis, and early intervention information since 2000. In 2012, CDC implemented a series of pilot studies to explore the feasibility, benefits, and challenges surrounding restructuring national EHDI surveillance to provide individual-level data reporting. Individual-level data reporting enables more detailed data analysis of the EHDI process. It provides the opportunity to examine the timeliness of key events in the EHDI process from birth through enrollment into early intervention services among different populations in much greater detail. Following the success of these pilots, in 2020, the CDC rolled out the individual-level data reporting model to 39 jurisdictions through a 4-year cooperative agreement project.
CDC received individual-level dataset on 2021 birth cohort (babies born January 1, 2021 – December 31, 2021) from each awardee in May 2023. In this presentation, we will summarize findings on the 2021 birth cohort. Preliminary findings show that hearing screening rate is high at over 97 percent. However, the diagnostic evaluation and enrollment in intervention services areas need further improvements, which will be discussed in the presentation. Findings also show that NICU status, WIC receipt, maternal education, and maternal race/ethnicity influence infants’ receipt of follow-up services. This indicate that additional work is needed to remove barriers to improve health equity for at-risk populations. Future collaborative opportunities to improve the efficiency of the data-reporting process and use of the data will also be discussed during the presentation.
Presenters
- Suhana Ema